This memory test is part of a research study conducted by Dr. Matthew Huentelman at the Translational Genomics Research Institute (or TGen) in Phoenix, Arizona.
The purpose of this scientific research study is to understand the factors that influence human memory. Such as your lifestyle choices, your medical family history, and your genetic make-up. Additionally, we want to understand how memory changes as we age. If we understand how memory changes in healthy people as they get older, we may be able to understand the changes that occur in people who have a memory-impairing brain disease (like Alzheimer’s disease).
We will not share any information that you give us. All of your information is stored in a secure and confidential database.
If you choose to give us your name and email address, they will be stored separately from your other personal data and test results. Names and email addresses will be stored in secure servers and run by a third-party provider so that we can contact you in a consistent, effective manner. Our email service provider will not contact you, nor will they share your information. All of our databases are password-protected and secure. No one can identify you without access to both of these data sources.
What if I change my mind and don’t want to participate in the study anymore?
Your participation in this study is completely voluntary. You may stop participation at any time during the research activity. You can contact the Study Coordinator at firstname.lastname@example.org to withdraw from the study.
What if I have questions or comments?
If you have any questions or comments about this activity, please contact Dr. Matt Huentelman at email@example.com. Please go to this web page to find out more about the people involved in this research.
What if I have questions about my rights in this research, have a complaint, or want to report a problem to someone besides the researcher?
If you have questions about your rights in this research study, please contact: the Western Institutional Review Board at:
Telephone: 1-800-562-4789 or 360-252-2500
The WIRB is a group of people who perform independent review of scientific research.
For questions, concerns, suggestions, complaints that are not being addressed by the research team, or in case of research-related harm, please contact the TGen Office of Research Compliance at firstname.lastname@example.org.